| Recruitment and Retention Reference Database |
|---|
|
| American Indian Law Center. The Model Tribal Research Code. Albuquerque, NM: Author; 1994a. |
| Condition: |
Population: American Indian |
Center: NERC |
|
| American Indian Law Center. The Role of Tribal Government in Regulating Research. Albuquerque, NM: Author; 1994b. |
| Condition: |
Population: American Indian |
Center: NERC |
|
| Anderson NB. Contributions of Behavioral and Social Research to Recruitment and Retention of Minority Populations: A Commentary. |
| Condition: behavioral and social research |
Population: |
Center: CALME |
|
| Arean PA, Alvidrez J, et al. (2003). "Recruitment and retention of older minorities in mental health services research." Gerontologist 43(1): 36-44. |
| Condition: mental health services |
Population: |
Center: CADC |
|
| Arean PA, Alvidrez J, Nery R, Estes C, Linkins K. Recruitment and retention of older minorities in mental health services research. Gerontologist. 2003 Feb;43(1):36-44. |
| Condition: mental health |
Population: |
Center: CHIME |
|
| Arean PA, Cook BL, Gallagher-Thompson D, Hegel MT, Schulber HC, Schulz R. Guidelines for conducting geropsychotherapy research. American Journal of Geriatric Psychiatry, 2003 Jan-Feb Vol 11 (1) 9-16. |
| Condition: geropsychotherapy, mental health |
Population: |
Center: CHIME |
|
| Arean PA, Gallagher-Thompson D. Issues and recommendations for the recruitment and retention of older ethnic minority adults into clinical research. Journal of Consulting and Clinical Psychology, 1996 Oct Vol 64 (5) 875-880. |
| Condition: mental health |
Population: |
Center: CHIME |
|
| Arean PA, Perri MG, Nezu AM, Schein RL, Christopher F, Joseph TX (1993). Comparative effectiveness of social problem-solving therapy and reminiscence therapy as treatments for depression in older adults. Journal of Consulting & Clinical Psychology, 61, 1003-10. |
| Condition: depression |
Population: |
Center: CHAMP |
|
| Arean, P.A., Alviderez, J., Nery, R., Estes, C., & Linkins, K. (2003). Recruitment and
Retention of older minorities in mental health services research. In L. Curry and J. Jackson, The Science of Inclusion (pp. 17-25). Washington, DC: The Gerontological Society of America. |
| Condition: mental health |
Population: |
Center: MCUAAAR |
|
| Attneave CL. Who has the responsibility? An evolving model to resolve ethical problems in intercultural research. Am Indian Alaska Native Ment Health Res 1989;2:18-24. |
| Condition: |
Population: American Indian, Alaska Native |
Center: NERC |
|
| Ballard EL, Nash F, et al. (1993). "Recruitment of Black elderly for clinical research studies of dementia: The CERAD experience." Gerontologist 33(4): 561-565. |
| Condition: dementia |
Population: African American |
Center: CADC |
|
| Brawley OW, Tejeda H. Minority inclusion in clinical trials issues and potential strategies. Journal of the National Cancer Institute. Monographs. (17):55-7, 1995. |
| Condition: cancer |
Population: |
Center: CALME |
|
| Brewster WR, Anton-Culver H, et al. (2002). "Recruitment strategies for cervical cancer prevention study." Gynecol Oncol 85(2): 250-4. |
| Condition: cancer |
Population: |
Center: CADC |
|
| Brown, D., & Topcu, M. (2003). Willingness to participate in clinical treatment research
among older African Americans and Whites. In L. Curry and J. Jackson, The Science of Inclusion (pp. 35-45). Washington, DC: The Gerontological Society of America. |
| Condition: |
Population: African American, Caucasian, men |
Center: MCUAAAR |
|
| Carter-Edwards L, Fisher JT, Vaughn BJ, et al.: Church rosters: is this a viable mechanism for effectively recruiting African Americans for a community-based survey? Ethn Health 7(1):41-55, 2002. |
| Condition: |
Population: African American |
Center: CHIME |
|
| Chadiha, L.A., Morrow-Howell, N., Proctor, E.K., Picot, S.J., Gillespie, D.C.,
Pandey, P., & Dey, A. (in press). Involving rural older African Americans and their female informal caregivers in research. Journal of Aging and Health. |
| Condition: |
Population: African American, women |
Center: MCUAAAR |
|
| Coleman EA, Tyll L, et al. (1997). "Recruiting African-American older adults for a community-based health promotion intervention: which strategies are effective?" Am J Prev Med 13(6 Suppl): 51-6. |
| Condition: |
Population: African American |
Center: CADC |
|
| Connell CM, Shaw BA, Holmes SB, Foster NL. Caregivers? attitudes toward their family members? participation in Alzheimer disease research: implications for recruitment and retention. Alzheimer Disease & Associated Disorders 2001; 15(3):137-145. |
| Condition: Alzheimer's Disease |
Population: |
Center: CHAMP |
|
| Corbie-Smith G, Thomas SB, St. George DM. Distrust, race, and research. Arch Intern Med. 2002 Nov 25;162(21):2458-63. |
| Condition: |
Population: |
Center: CHIME |
|
| Corbie-Smith G, Thomas SB, Williams MV, Moody-Ayers S. Attitudes and beliefs of African-Americans toward participation in medical research. J Gen Intern Med 1999;14:537-546. |
| Condition: |
Population: African American |
Center: CALME |
|
| Curry L, Jackson J (eds.), The science of inclusion: Recruiting and retaining racial and ethnic, elders in the health research, 2003; 63-71. Washington, DC: The Gerontological Society of America. |
| Condition: |
Population: |
Center: CHAMP |
|
| Curry, L., & Jackson, J. (2003). Recruitment and retention of diverse ethnic and racial
groups in health research: An evolving science. In L. Curry and J. Jackson, The Science of Inclusion (pp. 1-7). Washington, DC: The Gerontological Society of America. |
| Condition: |
Population: |
Center: MCUAAAR |
|
| Deloria V Jr. Commentary: Research, Redskins, and reality. American Indian Quarterly 1991; 15:457. |
| Condition: |
Population: American Indian |
Center: NERC |
|
| El-Sadr W, Capps L. The challenge of minority recruitment in clinical trials for AIDS. JAMA 1992;267:954-957. |
| Condition: AIDS |
Population: |
Center: CALME |
|
| Ford ME, Havstad SL, Tilley BC; Recruiting older African American men to a cancer screening trial (the AAMEN Project). Gerontologist, 2003; 47:27-35. |
| Condition: cancer |
Population: African American |
Center: CHAMP |
|
| Ford, M., Havstad, S.L., & Tilley, B.C. (2003). Recruiting older African American men
to a cancer screening trial (The AAMEN Project). In L. Curry and J. Jackson, The Science of Inclusion (pp. 26-34). Washington, DC: The Gerontological Society of America. |
| Condition: cancer |
Population: African American, men |
Center: MCUAAAR |
|
| Foster MW, Bernsten D, Carter TH. A model agreement for research in socially identifiable populations. American Journal of Human Genetics 1998;63:696-702. |
| Condition: |
Population: |
Center: NERC |
|
| Foster MW, Sharp RR, Freeman WL, Chino M, Bernsten D, Carter TH. The role of community review in evaluating the risks of human genetic variation research. American Journal of Human Genetics 1999;64:1719-1727. |
| Condition: human genetics |
Population: |
Center: NERC |
|
| Gallagher, D., Solano, N., Coon, D., & Arean, P. (2003). Recruitment and retention of
Latino dementia family caregivers in intervention research: Issues to face, lessons to learn. In L. Curry and J. Jackson, The Science of Inclusion (pp. 56-62). Washington, DC: The Gerontological Society of America. |
| Condition: dementia |
Population: Latino |
Center: MCUAAAR |
|
| Gauthier, MA, and Clark, WP (1999). Gaining and sustaining minority participation in longitudinal research projects. Alzheimer Disease and Associated Disorders, 13, S29-S33. |
| Condition: Alzheimer's Disease |
Population: |
Center: CHAMP |
|
| Gavaler JS, Bonham-Leyba M, et al. (1999). "The Oklahoma Postmenopausal Women's Health Study: recruitment and characteristics of American Indian, Asian, Black, Hispanic, and Caucasian women." Alcoholism, Clinical and Experimental Research 23(2): 220-3. |
| Condition: women's health |
Population: African American, Asian American, Latino, Caucasian |
Center: CADC |
|
| Gorelick PB, Harris Y, Burnett B, Bonecutter FJ. The recruitment triangle: reasons why African Americans enroll, refuse to enroll, or voluntarily withdraw from a clinical trial. An interim report from the African-American Antiplatelet Stroke Prevention Study (AAASPS). J Natl Med Assoc. 1998 Mar;90(3):141-5. |
| Condition: stroke |
Population: African American |
Center: CHIME |
|
| Hatch JW, Voorhost S, "The Church as a Resource for Health Promotion Activities in the Black Community". In: Health Behavior Research in Minority Populations: Access, Design, and Implementation, edited by Mecker DM, et al..Bethesda, Md.: U.S. Dept. of Health and Human Services, Public Health Service, National Institutes of Health, c1992. |
| Condition: |
Population: African American |
Center: CHIME |
|
| Haywood LJ, deGuzman M, Jackson L, Venegas J, Blumfield D, "Patient Recruitment for Hospital- and Clinic-Based Studes in the Inner City". In: Health Behavior Research in Minority Populations: Access, Design, and Implementation, edited by Mecker DM, et al..Bethesda, Md.: U.S. Dept. of Health and Human Services, Public Health Service, National Institutes of Health, c1992. |
| Condition: |
Population: |
Center: CHIME |
|
| Hazuda HP, Gerety M, et al. (2000). "Health promotion research with Mexican American elders: Matching approaches to settings at the mediator- and micro-levels of recruitment." Journal of Mental Health & Aging 6(1): 79-90. |
| Condition: |
Population: Latino |
Center: CADC |
|
| Hazuda HP, Gerety M, Williams JW, Lawrence V, Calmbach W and Mulrow C. Health Promotion Research with Mexican American Elders: Matching Approaches to Settings at the Mediator-and Micro-Levels of Recruitment. |
| Condition: health promotion |
Population: Latino |
Center: CALME |
|
| Henderson JN, Gutierrez-Mayka M, Garcia J, Boyd S (1993). A model for Alzheimer's disease support group development in African-American and Hispanic populations. Gerontologist. 33, 409-14. |
| Condition: Alzheimer's Disease |
Population: African American, Latino |
Center: CHAMP |
|
| Hooks PC, Tsong Y, et al. (1986). "Social networking as a recruitment strategy for Mexican American families in community health research." Hispanic Journal of Behavioral Sciences 8(4): 345-355. |
| Condition: |
Population: Latino |
Center: CADC |
|
| Howard CA, Samet JM, et al. (1983). "Survey research in New Mexico Hispanics: some methodological issues." American Journal of Epidemiology 117(1): 27-34. |
| Condition: |
Population: Latino |
Center: CADC |
|
| Hudson SV, Leventhal H, Contrada R, Leventhal EA, and Brownlee S. Predicting Retention for Older African Americans in a Community Study and a Clinical Study: Does Anything Work? |
| Condition: |
Population: African American |
Center: CALME |
|
| Israel BA, Schulz AJ, Parker EA, Becker AB. Review of community-based research: Assessing partnership approaches to improve public health. Ann Rev Public Health 1998; 19:173-202. |
| Condition: |
Population: |
Center: NERC |
|
| Johnson KM, Arfken CL, "Individual Recruitment Strategies in Minority-Focused Research". In: Health Behavior Research in Minority Populations: Access, Design, and Implementation, edited by Mecker DM, et al..Bethesda, Md.: U.S. Dept. of Health and Human Services, Public Health Service, National Institutes of Health, c1992. |
| Condition: |
Population: |
Center: CHIME |
|
| Kaluzny A, Brawley O, et al. (1993). "Assuring access to state-of-the-art care for U.S. minority populations: the first 2 years of the Minority-Based Community Clinical Oncology Program." Journal of the National Cancer Institute 85(23): 1945-50. |
| Condition: oncology |
Population: |
Center: CADC |
|
| Kessler II. Epidemiologic Studies of Parkinson's Disease. 3. A Community-Based Survey. Am J Epidemiol. 1972;96(4):242-54. |
| Condition: Parkinson's Disease |
Population: |
Center: CHAMP |
|
| King TE. Racial Disparities in Clinical Trials. NEJM 2002;346(18); 1400-2. |
| Condition: |
Population: |
Center: CALME |
|
| Levkoff SE, Levy BR, and Weitzman PF. The Matching Model of Recruitment. |
| Condition: |
Population: |
Center: CALME |
|
| Levkoff, S., & Sanchez, H. (2003). Lessons learned about minority recruitment and
retention from the Centers on Minority Aging and Health Promotion. In L. Curry and J. Jackson, The Science of Inclusion (pp. 8-16). Washington, DC: The Gerontological Society of America. |
| Condition: |
Population: |
Center: MCUAAAR |
|
| Levkoff, SE, Levy BR, Weitzman, PF. The Matching model of Recruitment. Journal of Mental Health and Aging, 2000 Spr Vol6 (1) 29-38. |
| Condition: |
Population: |
Center: CHIME |
|
| Macaulay AC, Commanda LA, Freeman WL, Gibson N, McCabe ML, Robbins CM, Twohig PL. Participatory research maximizes community and lay involvement. BMJ 1999;319:774-778. |
| Condition: |
Population: |
Center: NERC |
|
| Manson SM. Editorial. Amer Indian and Alaska Native Ment Health Res 1989;2:5-6. |
| Condition: |
Population: American Indian, Alaska Native |
Center: NERC |
|
| McDougall GJ, Holston EC, Wilke P. Recruiting African Americans into research on cognitive aging. Ethnicity and Disease 2001; 11:124-33. |
| Condition: Alzheimer's Disease |
Population: African American |
Center: CHAMP |
|
| McNeilly M, Musick M, Efland JR, Baughman JT, Toth PS, Saulter TD, Summer L, Sherwood A, Weitzman PF, Levkoff SE, Williams RB, and Anderson NB. Minority Populations and Psychophysiologic Research: Challenges in Trust Building and Recruitment. |
| Condition: psychophysiology |
Population: |
Center: CALME |
|
| McNeilly M, Musick M, Efland JR, Baughman JT, Toth PS, Saulter TD, Sumner L, Sherwood A, Weitzman PF, Levkoff SE, Williams RB Jr, Anderson NB. Minority populations and psychophysiologic research: Challenges in trust building and recruitment. Journal of Mental Health and Aging, 2000 Spr Vol6 (1) 91-102. |
| Condition: |
Population: |
Center: CHIME |
|
| McNeilly M, Musick M, et al. (2000). "Minority populations and psychophysiologic research: Challenges in trust building and recruitment." Journal of Mental Health & Aging 6(1): 91-102. |
| Condition: psychophysiology, mental health |
Population: |
Center: CADC |
|
| Mohatt GV. The community as informant or collaborator? American Indian and Alaska Native Mental Health Research 1989;2(3):64-70. |
| Condition: |
Population: American Indian, Alaska Native |
Center: NERC |
|
| Nacif de Brey V. Gonzalez VM. Recruiting for arthritis studies in hard-to-reach populations: a comparison of methods used in an urban Spanish-speaking community. Arthritis Care & Research. 10(1):64-71, 1997 Feb. |
| Condition: arthritis |
Population: Latino |
Center: CALME |
|
| Napoles-Springer AM, Grubach K, Alexander M, Moreno-John G, Fort? D, Rangel-Lugo M, P?rez Stable E. Clinical research with older African Americans and Latinos: perspectives from the community. Research on Aging 2000; 22:668-69. |
| Condition: |
Population: African American, Latino |
Center: CHAMP |
|
| Naranjo LE and Dirksen SR (1998). "The recruitment and participation of Hispanic women in nursing research: a learning process." Public Health Nursing 15(1): 25-9. |
| Condition: nursing |
Population: Latino, women |
Center: CADC |
|
| Norton IM, Manson SM. Research in American Indian and Alaska Native communities: Navigating the cultural universe of values and process. J Consult Clin Psych 1996;64:856-860. |
| Condition: |
Population: American Indian, Alaska Native |
Center: NERC |
|
| Ory MG, Lipman PD, Barr R, Harden JT, and Stahl SM. A National Program to Enhance Research on Minority Aging and Health Promotion. |
| Condition: health promotion |
Population: |
Center: CALME |
|
| Ory MG, Lipman PD, Barr R, Harden JT, Stahl SM. A national program to enhance research on minority aging and health promotion . Journal of Mental Health and Aging, 2000 Spr Vol6 (1) 9-18. |
| Condition: health promotion |
Population: |
Center: CHIME |
|
| Paskett ED, DeGraffinreid C, et al. (1996). "The recruitment of African-Americans to cancer prevention and control studies." Prev Med 25(5): 547-53. |
| Condition: cancer |
Population: African American |
Center: CADC |
|
| Picot, S.F., Stuckey, J.C., Smyth, K.A., & Whitehouse, P.J. (1996). Cultural assessments
and the recruitment and retention of African Americans into Alzheimer?s disease research. Journal of Aging and Ethnicity, 1, 5-18. |
| Condition: Alzheimer's Disease |
Population: African American |
Center: MCUAAAR |
|
| Pinn VW. Recruiting Older Women and Minority Members into Clinical Trials:
An Important Goal for Researchers. |
| Condition: |
Population: women |
Center: CALME |
|
| Prohaska TR, Walcott-McQuigg J, Peters KE, and Li M. Recruitment of Older African Americans Into Church-Based Exercise Programs. |
| Condition: exercise |
Population: |
Center: CALME |
|
| Reed, P., Foley, K.L., Hatch, J., & Mutran, E.J. (2003). Recruitment of older African
Americans for survey research: A process evaluation of the community and church-based strategy in the Durham elders project. In L. Curry and J. Jackson, The Science of Inclusion (pp. 72-81). Washington, DC: The Gerontological Society of America. |
| Condition: |
Population: African American |
Center: MCUAAAR |
|
| Roberson NL. Clinical trial participation. Viewpoints from racial/ethnic groups. Cancer. 74(9 Suppl):2687-91, 1994 Nov 1. |
| Condition: cancer |
Population: |
Center: CALME |
|
| Ruffin J. Promoting Minority Health Research at the National Institutes of Health. |
| Condition: |
Population: |
Center: CALME |
|
| Sano M, Mackell JA, Ponton M, Ferreira P, Wilson J, Pawluczyk S, Pfeiffer E, Thomas RG, Jin S, Schafer K, Schittini M, Grundman M, Ferris SH, Thal LJ. The Spanish Instrument Protocol: design and implementation of a study to evaluate treatment efficacy Instruments for Spanish-speaking patients with Alzheimer's disease. The Alzheimer's Disease Cooperative Study. Alzheimer Dis Assoc Disord. 1997;11 Suppl 2:S57-64. |
| Condition: Alzheimer's Disease |
Population: Latino |
Center: CHIME |
|
| Schoenberg BS, Anderson DW, Haerer AF. (1985) Prevalence of Parkinson?s Disease in the biracial population of Copiah County, Mississippi. Neurology 35:841-5. |
| Condition: Parkinson's Disease |
Population: biracial |
Center: CHAMP |
|
| Schoenberg BS, Osumtokun BO, Adeuja AO, Bademosi O, Nottidge V, Anderson DW, Haerer AF. (1988) Comparison of the prevalence of Parkinson?s disease in black populations in the rural United States and in rural Nigeria: Door to door community studies. Neurology 38:645-6. |
| Condition: Parkinson's Disease |
Population: African American |
Center: CHAMP |
|
| Shavers VL, Lynch CF, Burmeister LF. Factors that influence African-Americans' willingness to participate in medical research studies. Cancer 2001;91:233-236. |
| Condition: cancer |
Population: African American |
Center: CALME |
|
| Sinclair S, Hayes-Reams P, Myers HF, Allen W, Hawes-Dawson J, and Kington R. Recruiting African Americans for Health Studies: Lessons from the Drew-RAND Center on Health and Aging. |
| Condition: |
Population: African American |
Center: CALME |
|
| Stone VE, Mauch MY, Steger KA. Provider attitudes regarding participation of women and persons of color in AIDS clinical trials. Journal of Acquired Immune Deficiency Syndromes & Human Retrovirology. 19(3):245-53, 1998 Nov 1. |
| Condition: AIDS |
Population: women |
Center: CALME |
|
| Stoy DB, Curtis RC, Dameworth KS, Dowdy AA, Hegland J, Levin JA, Sousoulas BG. The successful recruitment of elderly black subjects in a clinical trial: the CRISP experience. Cholesterol Reduction in Seniors Program. J Natl Med Assoc. 1995 Apr;87(4):280-7. |
| Condition: cholesterol reduction |
Population: African American |
Center: CHIME |
|
| Swanson GM, Ward AJ. Recruiting minorities into clinical trials: toward a participant friendly system. Journal of the National Cancer Institute 1995; 87:(23)1747 1759. |
| Condition: |
Population: African American |
Center: CHAMP |
|
| Tejeda HA, Green SB, Trimble EL, Ford L, High JL, Ungerleider RS, Friedman MA, Brawley OW. Representation of African-Americans, Hispanics, and whites in National Cancer Institute cancer treatment trials. Journal of the National Cancer Institute. 88(12):812-6, 1996 Jun 19. |
| Condition: cancer |
Population: African American, Latino, Caucasian |
Center: CALME |
|
| Tilley, B.C., Wisdom, K., Sadler, & Bradford, W.D. (2003). Overcoming barriers to the
Inclusion of older African Americans in health outcomes research. In L. Curry and J. Jackson, The Science of Inclusion (pp. 63-72). Washington, DC: The Gerontological Society of America. |
| Condition: |
Population: African American |
Center: MCUAAAR |
|
| Van Den Eeeden SK, Tanner CM, et al. (2003) Incidence of Parkinson?s Disease : Variation by age, gender, and race/ethnicity. AJE 157:1015-1022. |
| Condition: Parkinson's Disease |
Population: |
Center: CHAMP |
|
| Warren-Findlow J, Prohaska TR, Freedman D. Challenges and opportunities in recruiting and retaining underrepresented populations into health promotion research. Gerontologist. 2003 Mar;43 Spec No 1:37-46. |
| Condition: health promotion |
Population: |
Center: CHIME |
|
| Wax ML. The ethics of research in American Indian communities. Am Indian Quart 1991;Fall:431-456. |
| Condition: |
Population: American Indian |
Center: NERC |
|
| Whelton PK, Lee JY, Kusek JW, Charleston J, DeBruge J, Douglas M, Faulkner M, Greene PG, Jones CA, Kiefer S, Kirk KA, Levell B, Norris K, Powers SN, Retta TM, Smith DE, Ward H. Recruitment experience in the African American Study of Kidney Disease and Hypertension (AASK) Pilot Study. Control Clin Trials. 1996 Aug;17(4 Suppl):17S-33S. |
| Condition: kidney disease, hypertension |
Population: African American |
Center: CHIME |
|
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